2018 wrap up

We are wrapping up 2018 and look forward to hearing from everyone in 2019.  Please submit your stories to give us time to proof read.

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Should you involve your Family when Diagnosed?

Your spouse might be the only person you can comfortably talk about PD with but it is important to remember that he or she still has a life to live. The fact is that giving proper care to a person with PD can easily become a full-time job. Is that something you would want for the person you love? Considering that the one person who knows about your condition might also be involved in an income-generating activity, he or she could easily get overwhelmed despite their best intentions.
To avoid burdening one person, you should try and get as many people as possible involved in care giving. When several people are involved they benefit from the experiences and knowledge of others and all of them are therefore less stressed.
Get specialist help
There is a wealth of knowledge that doctors who handle PD patients have acquired over the years and you could benefit a lot from such knowledge. Unfortunately, the doctors and other medical personnel capable of helping a person with PD might not be very readily available. If you got help from an inexperienced doctor, he or she might fail to give you proper medication. For this reason, it helps to conduct your research to find out where you can find such professionals.

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What should you do when diagnosed with Parkinson’s

Because of the way it affects both the patient and those around him or her, getting diagnosed with Parkinson’s disease (PD) can be truly traumatizing especially when the patient was not expecting such a diagnosis and has little knowledge of the disease. In fact most newly diagnosed patients are tempted to hide the disease from close family members thinking that such an action could be too shocking. What actions do you need to take when you learn that you’ve got PD?
Let people close to you know the truth
Hiding your condition from people around you could only be counterproductive. It might not be possible to hide your condition from your spouse, for instance. How can you when you have to take medication and actually depend on your spouse for caretaking? Your employer and colleagues should also be put in the picture. Depending on the stage your disease is at, you might find yourself needing o take more time off from work. When they know about your condition, people close to you will treat you with greater understanding.

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Moments of sleepiness during the day

Some people with PD experience moments of drowsiness during the day. This is usually accompanied by feelings of tiredness and you could find yourself falling into momentary sleep as you read a book or watch TV.
Again, it is possible that the medication you are taking is contributing to this and you should seek the advice of your doctor. It could also mean that you never got adequate sleep the night before. One way to ensure that you do not limit your ability to get adequate sleep at night is by ensuring that you avoid unnecessary distractions in the bedroom. You should therefore avoid reading books in bed or even watching TV. In a nutshell, make sure that your bedroom is used strictly for sleeping.
The factors that could cause sleep problems when you have PD are varied and, while you can do a lot to make your case manageable, it is always important to keep your doctor in the picture.

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How Parkinson’s Disease Could Affect your ability to work and do household chores

Parkinson’s disease (PD) is likely to affect your efficiency at work and ultimately your relationship with your employer and co-workers. Depending on the severity of the symptoms that you exhibit, there are times when other people, even without knowing what exactly you are suffering from, will tell that something is the matter. The question then is whether you should disclose what you are suffering from or keep it a secret.  Doing normal house hold chores like vacuuming and dishes can be impossible.  There are service providers you can hire like this Spokane Carpet Cleaning Company we hire to help some of our patients.  But you can’t help with every house chore.
Risk of getting fired
Whenever they think about sharing their stories with employers or co-workers, most people suffering from PD will certainly be concerned that such disclosures could make them get fired. Of course no employer will fire you because of your disease (they do not want to be sued for discrimination) but they could create other excuses and you could eventually find yourself out of work.
Whether you tell your story or not, chances are that people around you will start making wild guesses. If your PD gets exhibited in the form of slurred speech, people might start assuming that you come to work drunk and this will get you punished. So, shouldn’t you just let your employer know what you are suffering from?
Your employer could show great understanding
While the fears that a person suffering from PD has are legitimate, many people who openly discuss their conditions with their employers are usually pleasantly surprised to find that employers and co-workers react to their plight with great understanding and sympathy. An open discussion also gives you the opportunity to educate the people around you about the reality of living with PD. Such sharing could not only help you but could also make your employer and co-workers get interested in getting involved PD support groups as fundraisers.
If your PD has not made you completely unable to work, it is possible for you and your employer to find ways in which you can be retained in the workplace productively. If, for instance, you are unable to pick on huge tasks, you can work to see how such tasks could be broken down into small bits that you can take on while allowing time for you to get adequate rest.
However you look at it, the reasonable way to deal with PD at your workplace is to discuss it with your employer and co-workers. While not every employer is expected to react positively, in most cases you’ll find that you are treated with understanding.

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Sleep Disorders

Some Sleep Disorders That Afflict People with Parkinson’s disease And How to Deal With Them
If you are suffering from Parkinson’s disease (PD), there are sleep disorders that you are likely to suffer from and identifying them will help you know how to deal with them. Some of these disorders are accompanied by varying degrees of discomfort but they are mainly manageable and with the help of your doctor you can lessen their effects.
While you could have created a routine time when to go to bed, the onset of PD might mean that you’ll go to bed at your regular time and take too long to fall asleep. Moreover, if you are suffering from stiffness because of the disease, it might harder for you to be comfortable in bed so that even when you eventually fall asleep you’ll find yourself losing sleep after just a short while.
The causes of insomnia are varied and could even be caused by the medication that you are using and it is therefore important to discuss it with your doctor. If you have been sleeping a lot during the day, this might also contribute to lack of sleep at night and a person with PD should limit the number of hours they sleep during the day. Moreover, what you drink as bedtime approaches could contribute to sleeplessness and you must avoid taking coffee close to your bedtime.

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Parkinson’s Disease Memoirs

How I coped up with my father’s Parkinson’s disease.
When I first found out that my dad was diagnosed with Parkinson’s disease, I had no choice but to stay strong knowing that it would be a challenging road ahead in taking care of him and in giving full love and support during his painful ordeal with the life threatening disease. I hope that after reading this article, readers who have loved ones that are suffering from Parkinson’s disease would get inspired and find hope during this tough challenge. May you all find strength and comfort with how I was able to cope ip inspired and uplifted by my story.
It’s not easy being the caregiver of a loved one with a Parkinson’s disease. There are a lot of things that you need to do, and so many other things that you need to sacrifice in order to maintain the quality of life for your loved one, which should be prioritized at all times.

When I learned about my father’s diagnosis, I had to learn and get more familiar about the symptoms, treatments, and the stages of the disease. It’s highly important that I need to be well immersed with every little aspect about Parkinson’s disease in order to know how to manage it properly. Aside from giving love and support to my dad, I also have to keep track of his medications and exercise and know when to take my dad to the hospital for his appointments with the doctor.

As a caregiver, I know my role is not an easy job. And it’s also important to keep myself in tip top shape so that I could give the best care to my father.

One of the best lessons that I learned as a caregiver is having the right kind of balance in taking care of myself and my dad. As a rule of thumb, I need to take some time off for myself and ensure that I have ample time to take some rest. One thing that I would like to stress out to everyone who is taking care of their loved ones who are suffering from Parkinson’s disease is not to put their lives on the line. By all means, don’t stop seeing your friends to keep yourself from getting burned out. Take care of your house errands or you can delegate someone else to do the job. Maintaining my house’s interior is a job that I can handle by myself. Cleaning its exteriors, now that’s a real problem for me. Good thing I had sought help from a St Louis pressure washing company. They are my best allies when it comes to maintaining the cleanliness of my house. Now I won’t have to worry about anything. Lastly, I have to help my father feel worthless, so I encourage him to participate in any activity. I hope that these simple tips will help you kick start your journey in taking care of a loved one with Parkinson’s disease.

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